Friday, September 12, 2014

AimeeKay's Readers for Rett Event

My co-reviewer on the blog is a part of a event to bring awareness about a rare disease. Please check it out! Thanks! ~Melissa


Aimee from AimeeKay's Reviews and Randomness (and Books and Things) and Rae Z. Ryans are co-hosting an event together. Readers for Rett Awareness goal is to help spread the word about Rett's Syndrome and introduce the families and girls suffering from this awful disease. (If you want to find out more about Rett's itself, please feel free to follow this link, and see what it's about. To actually meet a sufferer of Rett's Syndrome click here.)

Details of the event:

Readers for Rett is currently seeking authors, bloggers, Rett families, and small businesses to help us spread the word about Rett Syndrome. We are looking for people interested in opportunities to host families on their blogs and allow them to tell their stories to your readers, hold interviews on their blogs, and spread the word about this disease affecting families and their daughters. We would also like to pair up Rett's families/girls with sponsors who will offer giveaways to event attendees on their behalf. Bookish related items are best, but anything from gift cards to trinkets is appreciated*.

What is Rett Syndrome?

QUICK FACTS:

—Debilitating neurological (movement) disorder that predominantly affects females. (Boys generally die from it because of the genetics involved) —Baby girls are born "normal" but begin to lose acquired skills between the ages of 1-3 years old. —Caused by a single gene mutation that leads to underproduction of an important brain protein. —The leading genetic cause of severe impairment in girls - most cannot speak, walk or use their hands. —Despite their physical disabilities, girls with Rett Syndrome are believed to be functioning mentally at a much higher level than previously thought. —As prevalent as Cystic Fibrosis, ALS and Huntington's. —Another little girl is born with Rett Syndrome every 90 minutes. —Rett Syndrome is a potentially REVERSIBLE disorder. Research has proven once protein levels are back to normal levels, symptoms subside.

The awareness party will be held on Facebook, so yes, you will need a Facebook account to participate as a sponsor for the event. However, if you don't have one, but still wish to help spread the word, we can work with that too. Time and date: We plan to start the event October 3rd @ 10 a.m. CDT. However the length is still up in the air until we find out exactly how many sponsors and families we have to work with. We are planning it for October as that is National Rett Awareness Month. *Sponsors donating prizes will be responsible for shipping costs. If you are interested in learning more, participating, or helping Readers for Rett spread the word please click on the link or fill out the form below. Readers For Rett's Event Form if the below form doesn't display

We also have buttons to share if you want to set up your own post to help promote this event or show your support for the Rett Awareness cause. Please email us a link to your post once it is live, if you do so; we can give thanks at the event to all who have helped in any way. If you do have a Facebook account/page, please consider changing your profile and header (free images below) in October to help spread the word. Right-Click and save as for Facebook use or feel free to swipe the code for web based use.

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Banners (FB compatible)

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21 comments:

  1. Kudos to Aimee & Rae Z. Ryans for using their bloggy powers for good, and to you Melissa, for helping spread the word. October 3rd is too far away for me to be able to commit to a FB party yet, but I'll add it to my calendar, and see what's up as the date grows closer.

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    1. Awesome! Thank you! And thank you Melissa for helping us spread the word about this event!

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  2. What a fantastic event!!! I have to admit to not being familiar with Rett's Syndrome, so thank you for working so hard to increase awareness. You guys are awesome:)

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    1. One more person who knows! Yay! The more people who know the more we can help to find a cure!

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  3. Wow. That's a pretty horrifying syndrome, one that I haven't heard, well, anything before this. A fabulous event!

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    1. Again the more who know! Hope you will be able to attend the event!

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  4. I hadn't even heard of this, I don't think. (The syndrome) It sounds very scary. What a wonderful event though!

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    1. That's part of why we are helping to spread the word, is because most people have never heard of it. But again, the more who know!

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  5. I had never heard of Rett's Syndrome before, it sounds like a harrowing thing to deal with. What an amazing event to raise awareness!

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  6. I haven't heard of it until AimeeKay brought it to my attention. Good luck AimeeKay!

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    1. Thank you. We are working on finding more Rett's girls and their families that will be able to participate on the 3rd. Part of the problem is the disease is so devastating. For example one of our girls is now in the hospital. Her mother is struggling just to get funds to get to and from the hospital, so I hate to add to her list of things with the event. She still plans on participating, I just hope that first and foremost her daughter is out of the hospital asap. Whether that means she has time for the event or not.

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  7. I can't say I know much about RETT

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    1. That's ok. That's the main reason we wanted to hold this event, to help raise peoples awareness of this horrible disease.

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  8. Oh how scary. I'd not heard of that before. I'll be hosting a party on the 3rd myself. Hope yalls goes wonderful!

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    1. Thank you! I hope your event goes well too!

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  9. Hi! Thank you so much for sharing about our event! (I'm glad the form decided to play nice and show up on your post. It refused to show up right on mine! lol) Even if you can't stop by on the 3rd, we plan on leaving the giveaways open for a few extra days. But even more important even if you stop by after the event is over, just commenting and saying hi to these girls and their families I know will mean so much to them. Thanks again!

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  10. Love that you are blogging for awareness. My mom use to help with physical therapy for a young girl who suffered from this disease.

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  11. This is awesome. I'm happy to see that more people are spreading awareness.

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  12. To everyone who was interested in attending the event:
    Here is the link to the event on Facebook. The link is now live and while the main part of the festivities won't be starting until Oct. 3rd. We are currently holding a few giveaways that are starting now. (Things like person who gets the most people saying that they were invited by them and changing your Facebook pic to the Readers for Retts pic until after the event.) Anyway here is the link to the event. Please feel free to invite anyone and everyone so we can make this as exciting as possible for the girls.
    Thanks again!
    AimeeKay

    https://www.facebook.com/events/706338589438524/?ref_notif_type=like&source=1

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Thanks for commenting! I ❤ comments!